I know we haven't had one in a while! Actually, we have had some appointments for Bella and things are looking good for her. I will post another time about her progress.
Tomorrow, I am taking Judah to the neurologist for a follow up visit. We now see her every 6 months which for us seems like an eternity between visits. I'm grateful for this; it's a sign that Judah is doing well. :) But, there are a few things that I need to discuss with her. Judah's syndrome is such that most of his health needs, for Judah anyway, don't tend to be emergent. They are nevertheless present and need to be addressed.
I need to bring up Judah's growth with her again, see how he's tracking in the charts and what we want to decide if need be about growth hormone testing. I have some concerns about his circulation and the hypertrophy I continue to see on his face, neck and one arm. And, we will most likely be scheduling a follow up CT Scan to see that his shunt is working appropriately.
Our appointment is at 10 a.m., and I will be leaving both Tucker and Bella with my mother in law. Hopefully, Bella will just be sleeping while I'm away, and the visit won't run too long so that I can get back in time to nurse Bella.
We would appreciate your prayers for tomorrow's visit, and I'll try to let you know how things go soon.