Yesterday was not easy, but as I replayed the events of the day in my mind this morning, I realized that I had choices to make about how to view it. I could view it through my flesh and see all that was difficult, draining, fearful and/or didn't go my way or I could view it through the lens of God's grace. There was evidence of God's grace all throughout the day:
1. My friend, Cathy, was able to come with us which was a HUGE help in so many ways.
2. Judah is amazing at these visits in the mature and winsome way he interacts with the staff. Yesterday, he was incredibly patient as I spoke with the doctor for close to an hour.
3. God gave me strength to ask the questions I needed to ask despite less than sensitive or gracious responses from the doctor at times.
4. I was reminded afresh just how merciful God has been to Judah and us by sparing us of neurological complications that so many Sturge-Weber kids endure. As we left, we saw Dr. Germain-Lee's next patient who was a SWS patient with apparent neurological involvement and in a wheel chair.
5. Another friend, Danielle, brought flowers and a card later in the day that served as a reminder to consider the One who "clothes the grass of the field" and remember that He will care for Judah and our family even moreso.
Yes, yesterday was not easy. It still remains unclear as to whether or not we should begin treatment for Judah. I believe the doctor is rather convinced that we should, but we haven't reached this conclusion quite yet. So, we continue to cry out to God for wisdom and clarity on this issue.
We will need to have more bloodwork done on Judah to verify some of the levels Dr. Germain-Lee was suspicious about on his pituatary stim. test. She felt they may have been contaminated and therefore wants us to get some additional bloodwork. This will help her determine whether she would recommend starting treatments sooner rather than later.
Pray that as we wait and pursue this bloodwork to help clarify things, that God will be making it clear to us what we should do.
Thanks again for your prayers.