I'm sorry I haven't been able to give the "play by play" over the last 2 days and have left some of you hanging. Thank you to my good friend, Laurie, who has been a bit more on top of providing updates for some of you. For those of you who have not yet heard, we did bring Bella home tonight. The blood in her spit up the other night was most likely due to the trama from the bronchoscopy and other tubing threaded down her throat over the course of time she spent in the hospital. It took her a while, but she eventually began to eat sufficient amounts to satisfy the doctors, and they decided to discharge her today.
We will need to take her for some follow up visits with our pediatrician and the ENT docs just to make sure the tracheomalacia is improving as is expected with time. She is expected to have reflux, a condition that seems to go hand in hand with the tracheomalacia, but we are going to pray and ask God to spare us all of that. The boys did have it and were treated medicinally until they were about 9 months old. It does make for very messy eating, clothing and carpets, but we'll do what we have to do in order to get the girl fed.
Please pray for wisdom, patience and much grace re: breastfeeding Bella. I had a nightmare experience with the boys, and I'm hoping not to repeat that with Bella. I want to be able to throw my anxieties on the Lord and look to Him in faith that He will supply all that I need to both serve Bella and help her fit into the dynamics of our family.
With Hopkins NICU behind us, I get to now rely on the Lord for strength and grace for the more "normal" transitions to mothering a newborn, which at times can test me even more sorely than the "big" stuff. Thank you for all the prayers you've prayed on behalf of me and my family. We are most definitely experiencing God's grace through them. We will continue to need your prayers as Lawrence goes back to a very demanding work schedule and I figure out how to do life all over again with three kiddos under three.
I will try to post some new pictures of my beautiful baby girl soon!!